Entering patient details into the SDMregistries is initiated by the doctor, usually the specialist responsible for the rare condition. If you would like your information to be included in SDMregistries, please share the registry details with your doctor. Alternatively, you can complete the form below with your and your doctor’s details, and we will contact them directly to assist with the registration process. The information you provide will be used only to contact your doctor. You can also contact us on info@sdmregistries.org
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