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SDMregistries

SDMregistries

International Registries For Rare Conditions Affecting Sex Development & Maturation

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Data Dictionary

Condition-specific data fields in the current version of the Registry (v 2025.01)

DSD Data Dictionary

CAH Data Dictionary

TS Data Dictionary

HH Data Dictionary

List of conditions and specific diagnoses in the Registry (v 2025.01)

Conditions Dictionary

The Data Request Justification Form must be completed when submitting a Data Access Request for a project that requires data from the registry

Data Requestion Justification Form

Last revised

7/9/2026

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SDMregistries
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