If you are considering a Registry study/project, the first step is to contact the Registry team who will guide you through the process. Please get in touch with us at least 1 month before the submission deadline at info@sdmregistries.org
Searching the Registry for data at centres other than the user’s own centre is only possible by the Registry Team. The data that are held on the Registry have not been subjected to any specific check for quality control and researchers are advised to practice due diligence.
To obtain data from the Registry, prospective investigators should have a look at the following documents:-
The Registry team will provide you with an off-line word version of the Data Request Form (word format) on which you can draft your proposal and then we will arrange to meet with you to discuss your application. The team will also guide you through the completion of the Data Justification Form to ensure only the data required for the study is provided.
Deadlines for Data Request
Data requests can be submitted at any time but will only be reviewed by the Data Access Committee after the following deadlines every year:
31st March and 30th September
Process After Submission
Once submitted the application is sent to the Data Access Committee for approval. Following submission, it takes about 6 weeks for the investigators to hear of the final outcome of their request and a further 8 weeks to launch the study. The Registry Team will arrange routine meetings with the Study PIs at initiation, launch, 3 months post-launch and then 6 monthly to continue supporting the study.
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