The Care Quality Improvement Committee (CQIC) consists of the project staff at the Office for Rare Conditions – Registries in Glasgow and external members who serve on the Committee for 3 years (plus 1 optional). If you are interested in becoming a member of the Committee please get in touch
| Member | Role | Location | Tenure Start | Tenure End |
| Justin Davies | Chair & SC Representative | Southampton | 2021 | 2027 |
| Sabine Hannema | LTC chair | Amsterdam | 2025 | 2028 |
| Faisal Ahmed | Project Lead, Incoming Chair (Host of I-DSD 2028) | Glasgow | NA | NA |
| Salma Ali | Early Career Professional & Project lead of CQI project | Glasgow | 2021 | 2027 |
| Arianne Dessens | Clinical Discipline Group Representative (Psychosocial Care) | Rotterdam | 2024 | 2027 |
| Riham Badawy | Patient Representative | Ontario | 2026 | 2029 |
| Nermine Amr | Ordinary member | Cairo | 2025 | 2028 |
| Eduardo Costa | Ordinary member | Porto Alegre | 2025 | 2028 |
| Nils Krone | Ordinary member | Sheffield | 2025 | 2028 |
| Helen Turner | Ordinary member | Oxford | 2025 | 2028 |
Last revised