Data Access Committee

The DAC consists of the project staff at the Office for Rare Conditions in Glasgow and external members who serve on the Committee for 3 years (plus 1 optional).  If you are interested in becoming a member of the Committee get in touch. All external members other than patient representatives are active users of the Registries.

DAC Remit

Jeremy TomlinsonChair, Oxford2026
Faisal AhmedProject Lead, GlasgowNA
Salma AliProject Team, GlasgowNA
Christa FlückChair, Steering Committee, Bern2024
Giorgio Dal MasoVincenza2026
Angela Lucas-HeraldProject Team, GlasgowNA
Sandosh PadmanabhanGlasgow2024
Sumudu SeneviratneColombo2025
Mariska SchröderNijmegen2026
Agustini UtariSemarang2026
Janielle van der VeldenNijmegen2025
Jillian BryceProject Manager, GlasgowNA

Data Access Committee members’ area

Data Access Committee DOI table

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