The DAC consists of the project staff at the Office for Rare Conditions in Glasgow and external members who serve on the Committee for 3 years (plus 1 optional). If you are interested in becoming a member of the Committee get in touch. All external members other than patient representatives are active users of the Registries.
Member | Term | |
| Jeremy Tomlinson | Chair, Oxford | 2026 |
| Faisal Ahmed | Project Lead, Glasgow | NA |
| Salma Ali | Project Team, Glasgow | NA |
| Christa Flück | Chair, Steering Committee, Bern | 2024 |
| Giorgio Dal Maso | Vincenza | 2026 |
| Angela Lucas-Herald | Project Team, Glasgow | NA |
| Sandosh Padmanabhan | Glasgow | 2024 |
| Sumudu Seneviratne | Colombo | 2025 |
| Mariska Schröder | Nijmegen | 2026 |
| Agustini Utari | Semarang | 2026 |
| Janielle van der Velden | Nijmegen | 2025 |
| Jillian Bryce | Project Manager, Glasgow | NA |
Data Access Committee members’ area
Data Access Committee DOI table
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