These staff are involved in the day to day running of the project at the Office for Rare Conditions which is based at the University of Glasgow, UK. In addition to coordination of the project, they are responsible for data security and quality. The wide range of activities in the Office are currently supported by funding from several sources including the University of Glasgow, EU, Glasgow Children’s Hospital Charity as well as industry. IT and software support is provided by the University of Glasgow.
| Faisal Ahmed | Project Lead |
| Salma Ali | Clinical Lecturer |
| Malika Alimussina | Clinical Research Assistant |
| Jillian Bryce | Project Manager |
| Minglu Chen | Senior Project Support |
| Sanhita Koley | Data Scientist |
| Angela Lucas-Herald | Clinical Lecturer |
| Martin McMillan | Research Team Manager |
| Xanthippi Tseretopoulou | Clinical Research Fellow |
| Fatma Ashraf | Project Admin |
Last revised