These staff are involved in the day to day running of the project at the Office for Rare Conditions which is based at the University of Glasgow, UK. In addition to coordination of the project, they are responsible for data security and quality. The wide range of activities in the Office are currently supported by funding from several sources including the University of Glasgow, EU, Glasgow Children’s Hospital Charity as well as industry. IT and software support is provided by the University of Glasgow.
| Faisal Ahmed | Project Lead |
| Jillian Bryce | Project Manager |
| Martin McMillan | Data Quality Assurance |
| Angela Lucas-Herald | Clinical Lecturer |
| Salma Ali | Clinical Research Fellow |
| Xanthippi Tseretopoulou | Clinical Research Fellow |
| Minglu Chen | Senior Project Support |
| Fatma Ashraf | Project Support |
Last Revised : 11th July 2023