These staff are involved in the day to day running of the project at the Office for Rare Conditions which is based at the University of Glasgow, UK. In addition to coordination of the project, they are responsible for data security and quality. Support for legal, contracts, finance and IT issues is provided by the University of Glasgow.
| Faisal Ahmed | Project Lead |
| Salma Ali | Senior Research Fellow |
| Jillian Bryce | Project Manager |
| Minglu Chen | Project Support |
| Yolanda Johnson | Project Support |
| Sanhita Koley | Data Scientist |
| Monica Logan | Clinical Scientist |
Last revised