Following on from I-CAH and I-TS, the development of a specific module for hypogonadotropic hypogonadism, ie the I-HH registry, began in 2023, in order to create a registry for patients with this rare condition. I-HH was launched in Feb 2025. It enables data sharing and capture of several fields that are specific to HH and will aid research that facilitates best practice management for people of all ages with HH. Currently, there are around 120 cases of HH in the registry.
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