The Registries are managed and administered by a Steering Committee which meets 6-monthly and is responsible for the overall direction of the initiative. The registries have a Data Access Committee which reviews new requests for data access and monitors the progress of these studies and reports to the Steering Committee. Day to day management of the registries is undertaken by the Project Management Group.

Members of the Steering Committee and the Data Access Committee have fixed terms. If you would like to join any of the committees, please contact us or subscribe to our newsletter and look out for our announcements.

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