Office for Rare Conditions Registries Drop-in Sessions

Drop-in sessions occur twice per month. One on the 1st Friday of the month at 9-10am (UK) and the other on the 3rd Tuesday of the month at 4-5pm (UK). Ad hoc sessions can be arranged at other times by contacting

Anyone who is interested in learning more about the I-DSD/I-CAH/I-TS registries and the activities it supports can join by Zoom. New users are particularly encouraged to attend. No need to register for the session, just come along!

Join Zoom Meeting

Meeting ID: 863 2682 7443

Passcode: 967871

Scheduled sessions in 2023 (use the above zoom link at either time – all times UK):

  • Friday 1st December (9-10am)
  • Tuesday 19th December (4-5pm)

Scheduled sessions in 2024