The I-DSD/I-CAH/I-TS Registry has been approved by the National Research Ethics Service in the UK.
Ethical Approvals
Ethics Approval for the I-TS Registry Jan 2021
Ethics Approval for the I-DSD/I-CAH Registry Sept 2019
Ethics Conditions of Approval Sept 2019
I-DSD REC application Sept-2019
The I-DSD/I-CAH/I-TS Registry is also on the UK NIHR Clinical Research Network Portfolio (Study Reference 12729).
Data Sharing Agreement – GU as Party B (for centres adding patient data to the registry)
Last Revised : 28th July 2023